Monday, November 30, 2009

Preparing for Christmas Break

We still have not heard back from the producer, so we are assuming it will not happen soon.  The hospital kept the tickets they had bought for us and has asked that we use them the next time we come up.  It was very generous of them and we are very grateful for the tickets.  We don’t know if they will want to do the story at a later date, but we are hoping!

Kyri, the woman who wrote the article for the hospital newsletter, sent me more copies of the article.  I will put a copy in the senior lounge.  I still haven’t figured out how to post it here but I will keep working on it.

I spoke with Dr. Henderson this week as well.  I will be spending a week up there over Christmas break so we will have lots of time to work together on his website.  Mom and I have been doing research on how make website for him and looking at what other doctors’ websites look like.  I am really excited to be able to meet with him and get this started.

Monday, November 23, 2009

Lots of Waiting

This week, I feel like I have not accomplished very much. It has been a lot of waiting on my part. We are waiting on the producer in DC to get back with us on a date for the interview. They have to work around Dr. Henderson’s hectic schedule so I have to be very flexible. I am completely okay with this though! I am just thankful to have these opportunities!

On Tuesday we received the article from Maryland. It turned out beautifully! We have asked for more copies because we only have 3. I am also trying to figure out how to post it on this blog. It shouldn’t be too complicated though.

Wednesday, November 11, 2009

First Article Published

Today the first article about my story has been published! It is very crazy to experience this, especially when I think about where I was this time last year! If someone had told me then, “Mackenzie, this time next year you will have had 2 surgeries, be pain-free, and have an article published on you in the Spartanburg Herald Journal,” I would have laughed in their face! It is all so surreal still and I am so grateful for the many opportunities God has given me through all of my struggles and pain!

I have been so blessed in the past 2 years and am so excited for the next years to come! This week we should be receiving the article from Maryland and finding out when we are filming for the TV station up there. I have already met 5 people this week with Chiari or EDS and 2 of them are because of the article! It is great to be able to share my story with them and give them advice based on my experiences.

Here is the link to the article:
http://www.goupstate.com/article/20091110/ARTICLES/911101007/1106?Title=Teen-is-walking-tall-again

Friday, November 6, 2009

More Opportunities

I had a great trip to Maryland this week and I am very excited to go back on Monday! We were able to talk to Dr. Henderson a lot and share some ideas with him. We haven’t settled on any ideas, but I a writing up proposals and estimated costs for them. I will write more about them when I have some details. I will get to talk to him again this week about the plans for the meetings and other ideas we have.

Today I did an interview for the Spartanburg Herald Journal. It was pretty neat to be able to share my story again and to know that it will be shared with others! It was also really good practice for the interview in Maryland next week! I am really excited, but also nervous for that. I am very thankful for all of the opportunities that I have been given!